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3 kittens

Tidal wave

Posted on 2009.06.22 at 11:17
On Friday my parents told me that there is a tumor in my mom's esophagus.  This is probably a death sentence, although we'll get more details throughout this week. Most likely it is esophageal cancer, which is generally symptomless until it's metastacized.  It's one of the bad ones, with 5 year survival rate of 5-20%, depending on which website you look at.

I've somehow concluded definitively in my head that mom has about three years left. I've been quite a mess this weekend. I'm always someone who cries easily, but holy shit, can I cry a lot or what. I've had that childish headachey feeling of having cried too much pretty much nonstop since we talked on Friday.

The only thing that actually consoles me is telling myself that I can call home as much as I want.  So I've called home several times, just to say "I'm really sad and scared" and then sit there with a lump in my throat while mom keeps the conversation alive. She might be sick of this by now; we've long since run out of idle topics to chit-chat about. But whatever, that's the type of imposition moms are perfect for.

Also on Friday, Hawaiian Punch hollered bloody murder all afternoon.  From getting her vaccinations.  Since she had good reason, it was easy to just bounce and soothe her continuously.  Plus it was kind of like she was letting out the howling anguish that the four-year-old inside me was also feeling.

Anyway, we'll find out the degree of metastasis today or tomorrow, and we'll find out whether the original tumor is operable on Thursday. Mom has said that for the first round of treatments, she'll give it everything she's got and pull out all the stops, and then she does not want a second round of treatments. Quality of life over incremental quantity of life.  I can respect that and understand it, but I kind of hate it, irrationally. She's being very zen about the whole thing, saying she can only deal with the news in bite-size pieces, and so she's letting it in gradually, and mostly taking note of how much she enjoys each day.  Dad is analyzing the hell out of it, which is exactly what I want to do as well - read the tea leaves from every possible angle.  He is a pathologist, actually, so he says things like, "If the slides are ready on Monday, I'll just look at them myself" and "I know a guy who's an expert in colon cancer, which has a similar treatment strategy, so I'll pick his brain on Tuesday".

I'm very worried about Dad. He and Mom are like intricate puzzle pieces that have melded into a single, inextricable mess. He can't cook dinner without her, she can't turn on a computer without him.  One of my biggest fears has always been how to comfort the remaining parent after the other one dies. This is the kind of tortured hyper-analysis I've been doing.

One thing that strikes me as an additional layer of tragedy is if Grandma outlives Mom.  For Grandma, she would have to watch her child die. For Mom, she would never get to live out from under Grandma's thumb. The whole thing is horrible.

Comments:


The Modesto Kid
[info]themodestokid at 2009-06-22 15:57 (UTC) (Link)
Sorry -- what awful news. Sending comforting thoughts your way.
shell
[info]umbo at 2009-06-22 16:01 (UTC) (Link)
I'm so, so sorry for this awful news--here's hoping for little or no metastasis.

*tons of hugs*
cog in satan's plan
[info]agent_mph at 2009-06-22 16:08 (UTC) (Link)
I am so, so sorry. I'm sending lots of good thoughts your way. Don't forget to take care of yourself.
[info]intothethickofit.wordpress.com at 2009-06-22 17:52 (UTC) (Link)
I've been in your shoes. Shortly after SG was born my mom had massive back surgery and came close to dying. I remember coming home one Saturday night and telling Mr. Tonks that I didn't know if she would make it through the night and then started sobbing. The layers of sadness, grief and fear were exhausting and I don't think I'd ever felt more alone in my entire life. I'm sorry you have to go through this, I'm sorry she has to go through this and I wish there was something more tangible than words to help you guys. *hugs*
(Anonymous) at 2009-06-22 18:40 (UTC) (Link)
Oh heebie, I'm sorry to hear that. We were in a very similar situation a few years ago, it's just no fun at all.

here's hoping for the best!

sb
Kristina B
[info]itfoaq at 2009-06-22 19:24 (UTC) (Link)
Shit. Heebs I'm so, so sorry. I really hope that this turns out to be the best possible outcome.
(Anonymous) at 2009-06-22 19:31 (UTC) (Link)

Sucks

That sucks, sucks, sucks.

I'm so sorry.

delagar
(Anonymous) at 2009-06-22 19:44 (UTC) (Link)
I'm really, really sorry, Heebie. Best wishes to you and your mom.

jms
[info]gymno at 2009-06-22 19:48 (UTC) (Link)
Oh Heebs. I'm so sorry.

But I also want to say that while I know blogs are sort of a conveniently edited version of what's happening in our heads, I think your reaction to this is actually pretty beautiful. Calling home often to tell Mom you're sad and scared is the kind of thing I still need therapy to be able to imagine doing. So, you know, props to you for owning and dealing with sad and scared instead of running away.
(Anonymous) at 2009-06-22 20:41 (UTC) (Link)
Jesus, heebie, I'm sorry. Thinking of you.
(Anonymous) at 2009-06-22 20:42 (UTC) (Link)
previous me. --Cala
Sara
[info]panisdead at 2009-06-22 20:47 (UTC) (Link)
I am so sorry to hear this. I'm hoping for the best possible outcome.
Mary
[info]puzzlement at 2009-06-22 22:46 (UTC) (Link)
Oh heebie that is awful, and I'm really sorry for your parents and you. I hope the news is better than you expect, but either way... I'm sorry.

Edited at 2009-06-22 10:46 pm (UTC)
[info]charleycarps.wordpress.com at 2009-06-23 01:01 (UTC) (Link)

So So Sorry

Truly awful. Best to all.
Jen Z
[info]jenzieg at 2009-06-23 01:31 (UTC) (Link)
I'm so sorry. I'll be thinking about you and your mom and hoping for the best possible outcome.
(Anonymous) at 2009-06-23 02:19 (UTC) (Link)
So sorry, Heebie.

(-- mrh)
(Anonymous) at 2009-06-23 03:28 (UTC) (Link)
I'm so sorry.

-Tree
(Anonymous) at 2009-06-23 11:07 (UTC) (Link)
Oh shit. So sorry to hear this.

chris y
The Last  Rambler
[info]robertainnc at 2009-06-23 14:28 (UTC) (Link)
I'm so sorry to read this--sending support all around.
(Anonymous) at 2009-06-23 16:16 (UTC) (Link)
So sorry, heebie. Wish there were a way to fix it.

--Di
neil_werewolf
[info]neil_werewolf at 2009-06-23 21:13 (UTC) (Link)
oh, goodness, that's awful. So sorry.
(Anonymous) at 2009-06-23 21:25 (UTC) (Link)
I'm so sorry. My dad died five years ago yesterday and it still hurts. I hope that things go as they possibly can with treatment.

It sounds like your father has found a good coping space. Hopefully he can make room for you to join him there. And your mom seems to have a good approach for her too. You shouldn't assume that she'll still be so rigid about the chemo down the line. It'll be a process.

Good helaing thoughts.
JPool
(Anonymous) at 2009-06-23 21:27 (UTC) (Link)
"go as well as they possibly can"
(Anonymous) at 2009-06-23 21:53 (UTC) (Link)

Oh no.

I'm so sorry. Wishing all health to your mom and your family.
(Anonymous) at 2009-06-23 21:55 (UTC) (Link)

Re: Oh no.

That was me, Megan (fta).
(Anonymous) at 2009-06-24 01:57 (UTC) (Link)
That's terrible news. Hope for the best. --YK
BEARS!
[info]cataplexis at 2009-06-24 04:53 (UTC) (Link)
I'm very worried about Dad. He and Mom are like intricate puzzle pieces that have melded into a single, inextricable mess. He can't cook dinner without her, she can't turn on a computer without him. One of my biggest fears has always been how to comfort the remaining parent after the other one dies. This is the kind of tortured hyper-analysis I've been doing.

Ahhhhh, shit, that's EXACTLY how I feel about my own parents. I can't imagine what you're going through, and I am so, so sorry, Heebie. Keep us posted, if you can. Much love.
(Anonymous) at 2009-06-24 04:54 (UTC) (Link)

this is ozma

Oh no HB I'm really horribly sorry. Wow. I am the kind of person who resigns myself to things sometimes but I will keep hoping for some kind of miracle for your mom here.

Wow, I'm just so very sorry--for you, your mom, your grandma.

When the baby is still small, one way to stop the crying is to give them sugar water in a bottle. Like a teaspoon of sugar in a couple ozs. of water right before the shot. Then immediately after they get the shot, nurse or give a paci.

I'm not sure what you do if she doesn't take a bottle or how to get some sugar into her. (Under 1 they are not supposed to get honey...so that's out.)

I swear this works and there was even a study of it in some pediatric journal. It's not clear if the sugar blocks the pain receptors in babies or what. But it will make the aftermath of shots way easier.

I realize some people are very horrified by sugar. But she won't remember and then be some kind of candy junky later.

(Anonymous) at 2009-06-24 20:05 (UTC) (Link)

Am late

I'm really sorry, Heebie. I had not clicked over here since early on the 22nd because I was busy talking to my ex- who may have a cancerous thyroid. Hopefully will find out today.

Not the same at all, I know. So, keeping that in mind, I will cross my fingers in hope of spontaneous remission. Can't hurt.

max
['Do take care of yourself, please.']
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